OMAHA (KPTM)- A common spinal disease in infants is claiming the life of an eight-week-old girl. Loved ones say they've never heard of the disease before but will do everything they can to make her last days memorable.
Her name is Cadence Ingram. She's the daughter of Joseph and Nicole Ingram. She is Joseph's first daughter and Nicole's first child. Joseph says Cadence is a happy baby--she loves to smile for the camera and is a complete daddy's girl.
"That's the only thing I've ever wanted--was a daughter. To me she's perfect in every single way. But now I've got to let her go," said Ingram.
Daddy's little girl is dying from a disease called Spinal Muscular Atrophy (Type 1). It's a muscular disorder that weakens her legs, arms and respiratory system. She's staying at the Children's hospital in Alabama, where she's hooked up to machines that will help her breathe because one of her lungs collapsed.
"That's one thing I never thought I would have to do, would be to burry my daughter. It's not anything that any family member should have to do," said Ingram.
"My son, who's in his 20's, Nikki who's also just 22 are making life ending decisions for their daughter," said Ingram's mother and Omaha nurse, Cindy Kwaitkowski.
Doctors say baby Cadence could live as much as 8 months to less than two years old.
"Spinal muscular atrophy affects about 50,000 infants in the united states. One in every about 40 people have this recessive disorder," said Kwaitkowski.
"They do have drugs out there that will stop her continuously from deteriorating. There's still a one percent chance that she can live a normal life and I'm praying to god that we're one of those one percent," said Ingram.
Staying by his daughter's side, hoping she's part of that one percent is taking a toll on finances. Ingram runs his own business, but struggles to keep it going because he's constantly at the hospital. So loved ones in Omaha have planed a benefit concert in her owner to help raise money.
"The response has just been amazing. So I'm just thankful that everybody's come together and everybody can come out and donate and help any way they can," said event coordinator Storee Johnson.
The benefit concert will be February 10th at Shamrock Bar and Grill on 103rd and Fort. The concert will be from 2:30pm to 2am and will feature performers from all across the metro.
"As long as we have faith in god, you know we come together in prayer, we show support, you know we sacrifice our time for this little girl, that's what counts," said Guerrilla X, one of the headliners for the event.
Those who can't make it to the benefit still have a chance to donate. Information on how to donate can be found at the Cadence Jade web site. To hear more about Cadence's story, visit the Prayers for Cadence Facebook page.